Having Fun and Creating Memories

It has been almost one week to the hour since our lives changed forever. It has been the fastest and longest week of my life. Our days have been full of tears, glimpses of hope, insane amounts of phone calls, and amazing support from our friends, family, work families, and agencies and organizations in Phoenix. I just got off the phone with the high risk doctor and our blood work isn't back yet. I'm both relieved and bummed. I want to know if Mary has a Trisomy condition for sure. At the same time, I'm thankful that we will be able to not think too much about it this weekend (as much). 

Today I scheduled our next Level 2 ultrasound for June 5. Please join us in prayer that at this ultrasound they will be able to see her kidneys, lungs, hands, feet, nose, and lips. Pray they are all in perfect condition and that there is nothing wrong with them. Please also pray for a miracle for her little brain. God is powerful. After that ultrasound we will be scheduled for an echo of her heart at Phoenix Children's Hospital. At that same time we will meet with a specialty group of neurosurgeons who specialize on little unborn babies. I know this is a few weeks out, but it's never too early to start praying. Mary and I will go through an MRI so we can get the best images of her brain. They will walk us through our options and what will happen when she is born. They will also support us as we make some of the hardest decisions of our life. The MRI will tell us what level of holoprosencephaly Mary has. It will also confirm whether or not Mary has hydranencephaly. We continue to have hope and pray for a miracle. 

Wednesday May 20, Sam and I will meet with Ryan House. If you have never heard of Ryan House and all the amazing things they do for the Phoenix community, I recommend you look them up. They will be in charge of our palliative care throughout our pregnancy and after she is born. They will help get us in contact with different agencies and provide the emotional support we need. As I was talking with them today, she warned us that our conversations may be difficult. For this appointment we ask for prayers for strength for Sam and myself. 

For now though, Sam, Mary and I will enjoy our weekend. It started on a positive note last night. Mary and I played against Sam on Nintendo 64 Mario Kart. I have always been HORRIBLE and last night I was slightly better than horrible. We laughed and had a great time. Mary must have been happy because her mommy and daddy were laughing and enjoying themselves. 

Below are some pictures that some of you have shared with over the last week that have lifted our spirits. 

Yes!

AMEN! 

These flowers have been given to us over the last week. They make me SO happy to look at! 

Tonight we will go to my big sisters house for dinner and even more laughs and good times. We are going to spend a lot of time with friends and family this weekend. I'm not sure what all we will do, but it will all be with thankful hearts for yet another day with our sweet and precious Mary Margaret.